Course Code: REL-ACU-0-CRCDCR
Hours: 1
Type: Online Course
Content Expiration Date: 12/31/2026
Learning Objectives:
Recall the definitions and background information for rare, ultra-rare, orphan, and complex diseases, as well as some common rare diseases.
Recognize patient care, advocacy, and resource barriers for those impacted by rare diseases.
Identify systematic approaches to address barriers for funding and research, care, advocacy, and resources for those affected by rare diseases.
Outline:
Section 1: Overview
Introducing the Zebra
Key Takeaways
Section 2: Patient Care
Common Barriers
Key Takeaways
Section 3: Resources and Advocacy
Common Barriers
Section 4: Systematic Approaches
Funding and Research
Care
Resources and Advocacy
Key Takeaways
Section 5: Conclusion
Course Contributor
Resources
References
Subject Matter Expert: Shalla Newton, MSN, RN, NE-BC
Shalla is a subject matter expert (SME)/writer for Relias. She completed her BSN and two undergraduate degrees with top honors from the University of Wisconsin-Madison. Shalla earned her dual MSN degrees from Johns Hopkins University with top honors. She also maintains her post-baccalaureate nurse educator certificate (NE-BC). Shalla’s tenure spans over 20 years of cross-functional leadership and direct clinical roles in healthcare, biopharma/biotech, government affairs, managed care/market access, nonprofit patient advocacy, and research. Her subject matter expertise is in rare, orphan, and complex diseases. Her sub-expertise is in immune-mediated diseases (rheumatology and immunology), genetics, neurology, hematology/oncology, several pediatric diseases, population/public health, and larger systemic healthcare affairs. Shalla is a published author with leading rare disease experts and a global speaker. She also sits on scientific, advocacy, and legislative advisory boards. She has led national advocacy and disease awareness campaigns, including speaking before congress, leading to the first-in-class rare disease biologic approval and investigative treatment protocols.
Target Audience:
The target audience for this course is: Medical Providers; Nursing Personnel; in the following settings: Hospitals: Acute.
Relias Learning will be transparent in disclosing if any commercial support, sponsorship or co-providership is present prior to the learner completing the course.
Relias Learning has a grievance policy in place to facilitate reports of dissatisfaction. Relias Learning will make every effort to resolve each grievance in a mutually satisfactory manner. In order to report a complaint or grievance please contact Relias Learning at support@reliaslearning.com.
All courses offered by Relias Learning, LLC are developed from a foundation of diversity, inclusiveness, and a multicultural perspective. Knowledge, values and awareness related to cultural competency are infused throughout the course content.
To earn continuing education credit for this course you must achieve a passing score of 80% on the post-test and complete the course evaluation.
Course Delivery Method and Format
Asynchronous Distance Learning with interactivity which includes quizzes with questions/answers, and posttests.